
Martin Murray has been working with registered charity DebRA (www.DebRA.org.uk), and is very keen to get as much exposure for them as possible. DebRA work on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB). Although it’s a very rare condition, patients suffer from skin and internal body lining blisters. The slightest knock or rub can be very painful and open wounds. Because the disease is genetic, it is not contagious (cannot be caught) and is passed on from parents to children. EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK.
If you want to get involved, there are lots of ways that you can help. Many supporters of the charity simply like to leave a donation, which you can do from their donation page. Alternatively you can take part in or help organise the many fundraising events that they organise throughout the year. These include charity fun runs, charity dinners, sporting events and much more.
Check out the DebRA events calendar to find out when the next event is taking place.














